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Many parents find that after the birth of a child with a birth defect they feel distressed, guilty and helpless.
What you need to remember is that you do not know what caused it therefore you could not have prevented it.
Caring for a baby who can not feed well can be exhausting.
Therefore it is important that you take care of yourself and accept any help that is offered.
Be honest with yourself and your family about how you truly feel and remember our forum. It can be extremely helpful talking to other mums and dads in similar situations. I had no support other from the cleft team. I found them extremely comforting and when I looked at my little angel I knew that whatever treatment or surgery he would be facing I needed to keep myself strong for him.
The advice I offer you now is to look at our website realise you are not alone and that the child you are caring for is extra special and you are too. Sarah, Ben aged 4 x x x
Explaining to your child about going into hospital for an operation may be hard so here’s a little idea that helped us:
We bought a bear and placed bandages on it and explained that this is a special hospital bear. This bear goes with our son to hospital every time.
What you need to remember is that you do not know what caused it therefore you could not have prevented it.
Caring for a baby who can not feed well can be exhausting.
Therefore it is important that you take care of yourself and accept any help that is offered.
Be honest with yourself and your family about how you truly feel and remember our forum. It can be extremely helpful talking to other mums and dads in similar situations. I had no support other from the cleft team. I found them extremely comforting and when I looked at my little angel I knew that whatever treatment or surgery he would be facing I needed to keep myself strong for him.
The advice I offer you now is to look at our website realise you are not alone and that the child you are caring for is extra special and you are too. Sarah, Ben aged 4 x x x
Explaining to your child about going into hospital for an operation may be hard so here’s a little idea that helped us:
We bought a bear and placed bandages on it and explained that this is a special hospital bear. This bear goes with our son to hospital every time.